Akhirnya rumahku siap jua..

Entah kali ke berapa la rumah ni saya cat baru. Sebenarnya saya dah lama teringin nak tukar ke layout ni. Yang ini namanya 'Fresh Template'. Ada satu lagi lebih kurang ni juga namanya Zinmag Primus (dah bunyinya macam Transformers jek!).

Layout sebelum ni tak la teruk sangat. Cuma saya dah lama nak tukar. Satu sebab daku tak suka header dia yang kaler hitam tu. Boleh tukar kaler tapi alang² tu daku revamp la the whole thing. Penyakit nak revamp blog ni datang sejak daku menggodek blog Aboo ari tu. Tambah lagi semalam daku pasang kat dia gambar Tom Morello yang cun itu. Gambar dia yang cun, orangnya tak cun ok!

Sebab kedua - layout ni tak perlukan gambar untuk buat entry. Hahaha... asyik tagih gambar je beb. Letih la.

Tapi satu benda lagi saya nak wat. Tu pun kalo orang lain tak de masalah la. Saya nak letak balik 'read more' tu. Tapi since Sarah kata dia macam payah nak baca entry blog ni, mungkin salah satunya disebabkan oleh 'read more' tu la kot. Tengoklah macamana. Plus saya nak tambah 'older posts' atau page number kat bawah tu.

So sesiapa yang masuk masa tengah construction tadi ya ampun maaf dipinta. Abih baju korang berdebu eikk? Silap haribulan terpijak pulak paku. Jangan serik untuk datang lagi ye...

A Bill of Rights For Parents of Kids With Special Needs

I got this from Sarah. The original great post was by Ellen from her blog - To The Max. It is superb and well written. A sum up on what we feel for being a parent to special kid(s). I would like to share you the feelings as well:


A Bill of Rights For Parents of Kids With Special Needs

We, the parents, in order to form a more perfect union, establish justice, insure tranquility (and sanity) and promote the general welfare of our families, do ordain and establish this Bill of Rights.

* We have the right to expect our kids to be seen for who they are as individuals, not as labels or diagnoses.

* We have a right to trust our instincts about our kids and realize that experts don't always know best.

* We have a right to ignore the remarks, questions and stares and not give explanations or excuses for why our children are the way they are.

* We have a right to choose alternative therapies for our kids.

* We have a right to roll our eyes straight out of our heads when we encounter certain mothers who brag nonstop that their kids are the smartest students/best athletes ever.

* We have a right to wonder “What if…” every so often.

* We have a right to play aimlessly with our children. Not for therapeutic or educational purposes—just for fun.

* We have a right to blast Bruce Springsteen/Tom Petty/Any Rocker, down a glass of Pinot Grigio, get a pedicure, go out with the girls or do all of the aforementioned at once if that's what it takes to avoid burnout.

* We have a right to react to people’s ignorance in whatever way we feel necessary.

* We have a right to not always have our child be the poster child for his/her disability and some days be just a child.

* We have a right to go through the grieving process and realize we may never quite be "over it."

* We have the right to give our kids chores. Even better if they can learn to make breakfast in bed for us.

* We have a right to stretch the truth when we fail to do the exercises the therapist asked us to do this week because we were too darn tired or overwhelmed.

* We have a right to have yet more Pinot Grigio.

* We have a right to fire any doctor or therapist who's negative, unsupportive or who generally says suck-y things.

* We have a right to tell family and friends that everything may not be OK—at least not how they mean it, anyway.

* We have a right to hope for an empty playground so we don’t have to look into another child’s eyes and answer the question, “What’s wrong with him?”

* We have a right to bawl on the way back from the playground, the birthday party, the mall or anyplace where our children’s challenges become glaringly obvious in the face of all the other kids doing their typical-development things.

* We have the right to give our children consequences for their behavior. They may be “special” but they can still be a royal pain in the ass.

* We have a right to take a break from Googling therapies, procedures, medicine and treatments for our kids to research upcoming concerts, exotic teas or anything not related to our children’s disabilities.

* We have a right to talk about how great our kids are when people don’t get it.

* We have the right to not always behave as inspirational icons who never complain or gripe about the sometimes awful realities of raising a child with special needs.

* We have a right to expect quality services for our children not just when they’re infants, preschoolers and elementary school age, but when they’re in older grades and adults, too.

* We have a right to adequate funding for those services and to not have to kick, scream or endure a wait for them.

* We have a right to get tired of people saying, as they give that sympathy stare, "I don't know how you do it."

* We have a right to wish that sometimes things could be easier.

* We have a right to cheer like crazy anytime our children amaze us—or weep like lunatics.

* We have a right to push, push and push some more to make sure our children are treated fairly by the world.

(Compiled in honor of her little boy, Max, and all of the beautiful children on June 17, 2009).

For a printable copy, e-mail LoveThatMax@gmail.com.

On Syafiah, here are few photos of her recently:





Yeah... I've the right not to hardly push her to be someone else. I've the right to treat her just like any other kids too. For me - she's still a cute smart girl!!