It has been 5 months Syafiah is free from any shunt revision up until today. It is approximately 151 days since her 3rd shunt revision which was on January 16, 2009. Alhamdulillah as this is the longest shunt usage so far.
Her 1st shunt placement was on June 11, 2008. Approximate usage was 140 days until the 1st shunt revision which was done on October 29, 2008. 2nd shunt revision was done after 44 days from the 1st revision with the longest stay in HSB (12 days). The shortest was between 2nd shunt revision and 3rd shunt revision, which was 35 days only.
The reasons of failure are various:-
1) 1st revision - supoptimal shunt function, swelling around reservoir & shunt compressible but slow refilling.
2) 2nd revision - shunt infection.
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3) 3rd revision - blockage at the distal end.
So far, she has gone through 7 operations - 3 EVDs, 1 shunt placement and 3 shunt revisions with 6 times of CT scan! I can't imagine how is it like to be on the bed in the operation theater so many times. She is indeed a survivor and tough fighter! I don't think I can't make it and have a spirit like hers.
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This is one of the "why" I don't push her and expect her to be what I want her to be (i.e. should do this and this, at certain age). She went so much of ups and downs. At one time her left side couldn't move at all, but now they could move actively. I pray and hope that this shunt will last longer and miracles would happen along the way, insyaAllah.. ameen!
p.s. : Mak dia yang tak tahan dok spital sebenarnya. Masa 3rd revision tu saya surrender habis. Badan sakit, selsema. Though HSB boleh kira selesa untuk yang menunggu, tapi saya tetap juga sakit.
Her 1st shunt placement was on June 11, 2008. Approximate usage was 140 days until the 1st shunt revision which was done on October 29, 2008. 2nd shunt revision was done after 44 days from the 1st revision with the longest stay in HSB (12 days). The shortest was between 2nd shunt revision and 3rd shunt revision, which was 35 days only.
The reasons of failure are various:-
1) 1st revision - supoptimal shunt function, swelling around reservoir & shunt compressible but slow refilling.
2) 2nd revision - shunt infection.
+2.jpg)
Switch the shunt from right to left side. She has both 'karipap' on her head. Her hair was fully shaved by a Chinese specialist! (yang hensem tu.. huhu!)
I tell you, stitches were opened without any drugs.
I tell you, stitches were opened without any drugs.
3) 3rd revision - blockage at the distal end.
Post operation on 16 January 2009.
Before she was brought home on 19 January 2009.
Before she was brought home on 19 January 2009.
So far, she has gone through 7 operations - 3 EVDs, 1 shunt placement and 3 shunt revisions with 6 times of CT scan! I can't imagine how is it like to be on the bed in the operation theater so many times. She is indeed a survivor and tough fighter! I don't think I can't make it and have a spirit like hers.
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This is her today (dengan kepala yang grunge sebab kemek!). Just look at her left hand, has to be straighten by HO.
This is one of the "why" I don't push her and expect her to be what I want her to be (i.e. should do this and this, at certain age). She went so much of ups and downs. At one time her left side couldn't move at all, but now they could move actively. I pray and hope that this shunt will last longer and miracles would happen along the way, insyaAllah.. ameen!
p.s. : Mak dia yang tak tahan dok spital sebenarnya. Masa 3rd revision tu saya surrender habis. Badan sakit, selsema. Though HSB boleh kira selesa untuk yang menunggu, tapi saya tetap juga sakit.
