
Previous HO vs Current HO.

This photo and above were taken yesterday.

Today's photo.
Mastura and Adam at a restaurant nearby - BRO (Belanga Resepi Original).
Got to go. I need to cycle to Adam's school. :)

a life story about a hydrocephalic, a patient of cerebral palsy, her family, childhood and health!
Her photos collection from day 2 until now... have fun! Featured actors - my mom, my sister, Mastura and Adam. Me and husband? Let us remain low profile. ...
We, the parents, in order to form a more perfect union, establish justice, insure tranquility (and sanity) and promote the general welfare of our families, do ordain and establish this Bill of Rights. We have the right to expect our kids to be seen for who they are as individuals, not as labels or diagnoses. ...
She was a healthy baby in the womb. We, and even my gynae, could not predict that she'd born as a preterm baby. Even worst, we did not know her gender until she was born (her positions varies everytime we 'looked' at her). Everything was ok and everything happened so fast too! This journey was and is actually her destiny! She chose to be the one. ...
Remember this entry? I wrote "I'm waiting for the moment she'll laugh at me!". Dia sangat² susah senyum dan gelak, ok. As I was surfing and blogging this afternoon, I heard several 'weird' sounds. Eh.. is there something wrong with my daughter? *in my head I hope that it won't be fits/seizures.. bad thought!* When I checked and looked at her, these are what she's doing (until now.. oh! Dia masih belum berhenti sebab siblings dia masih melayannya):. ...
Weary eyed I fight- for my child who has not a choice. I never imagined I’d engage in a relationship between this child’s senses and her brain. They often do not communicate well, and so I act as mediator, interpreter, and confidant. My hope is that one day my beautiful girl will do this for herself. I use whatever means necessary, although the strength to do so does not come from me. My strength is drawn from her adamancy to be, and to be okay. Her tenacity to cope- gives me the tenacity to try one more thing, one more day. ...







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