Her Journey Through Life

Posted by suealeen

Her photos collection from day 2 until now... have fun! Featured actors - my mom, my sister, Mastura and Adam. Me and husband? Let us remain low profile. ...

A Bill of Rights For Parents of Kids With Special Needs

Posted by suealeen

We, the parents, in order to form a more perfect union, establish justice, insure tranquility (and sanity) and promote the general welfare of our families, do ordain and establish this Bill of Rights. We have the right to expect our kids to be seen for who they are as individuals, not as labels or diagnoses. ...

24 Hours To Live

Posted by suealeen

She was a healthy baby in the womb. We, and even my gynae, could not predict that she'd born as a preterm baby. Even worst, we did not know her gender until she was born (her positions varies everytime we 'looked' at her). Everything was ok and everything happened so fast too! This journey was and is actually her destiny! She chose to be the one. ...

Finally... she laughs with sounds!

Posted by suealeen

Remember this entry? I wrote "I'm waiting for the moment she'll laugh at me!". Dia sangat² susah senyum dan gelak, ok. As I was surfing and blogging this afternoon, I heard several 'weird' sounds. Eh.. is there something wrong with my daughter? *in my head I hope that it won't be fits/seizures.. bad thought!* When I checked and looked at her, these are what she's doing (until now.. oh! Dia masih belum berhenti sebab siblings dia masih melayannya):. ...

Weary Eyed I Fight..

Posted by suealeen

Weary eyed I fight- for my child who has not a choice. I never imagined I’d engage in a relationship between this child’s senses and her brain. They often do not communicate well, and so I act as mediator, interpreter, and confidant. My hope is that one day my beautiful girl will do this for herself. I use whatever means necessary, although the strength to do so does not come from me. My strength is drawn from her adamancy to be, and to be okay. Her tenacity to cope- gives me the tenacity to try one more thing, one more day. ...

Jan 28, 2010

Photos...

Some of recent photographs. Location - everywhere.


Syafiah's current AFO (ankle foot orthoses) and HO (hand orthoses).


Previous HO vs Current HO.




This photo and above were taken yesterday.


Today's photo.


Mastura and Adam at a restaurant nearby - BRO (Belanga Resepi Original).


Got to go. I need to cycle to Adam's school. :)







Jan 26, 2010

Longggggg silence...

It's been so long that I didn't write anything in this blog. My HDD has collapsed completely! Need to change it, as well as with the RAM. And not to mention, the RM! *lol*.

I've so much to tell, be it my daily life or few info on health awareness. To friends who have been looking for me, I'm honored. I feel so blessed for having friends like all of you. Honestly, I miss blogging, RH (a forum), facebook-ing and chit-chatting with online friends. However, I'm so occupied with my daily life. Thus, it caused me to set aside my hobbies and adapt myself with new routine. Time flies very fast too.

I've few Syafiah's new photos in my sister's PC. Unfortunately, there's none in my own hand phone that I used to take the photos. Ironic! And another ironic thing is, I haven't taken any chance to stop by at the CC (cyber cafe) that is happened to be on the way I bring my son to his school by bicycle everyday! The reason is - I don't ask for my husband's permission (isteri solehah la konon!).


Syafiah's left foot AFO (ankle foot orthesis/orthoses) (leg braces). She wore it for the 1st time on January 12, 2010. She also got her brand new HO for her left hand on the same day. Recently, she got her 24-months jab and her current weight is 8.9 kg. She loves to eat bread and other wheat based meal instead of rice porridge/cereal. She's fit and active. She has also celebrated her 1st year shunt anniversary recently. Alhamdulillah.


Latest look of Adam during a sermon in a mosque in our area.

And yes, I still cycling even though I've mentioned that I might just wanted to do so for the 1st week of school session. I get used to it. At the same time, I haven't exercised much before. So I take the chance. Yep, my hands have burned a bit *lol* but I love to do it! I believe it would be the best moment with Adam. So retro, huh?

Anyway, I'm so sorry that I couldn't visit friends' blogs and couldn't attend to each comment at this moment. Time constraint. Thanks to all. Thanks to Sarah who was so thoughtful to nominate this blog for a Lemonade Award too. Sarah, I'm thinking of you and Violet. xoxo.

Miss you guys a lot!






Dec 31, 2009

Final entry...

... I mean, before end of this year. :)



I would give a chance for a review entry. What I can jot down for almost a decade are:

1) 2000 - I was unemployed. My dad fell sick several times.

2) 2001 - I began to work for the 1st time. My dad passed away.

3) 2002 - I got engaged.

4) 2003 - I got married.

5) 2004 - Mastura was born.

6) 2005 - Adam was born.

7) 2006 - Working career was at top. I made up to 2 positions twice per yer.

8) 2007 - I quit working.

9) 2008 - Syafiah was born. A rough year, juggling between my personal needs which was career and new experiences. Syafiah admitted few times into HSB, undergone few surgeries. In December, I worked again but only a week when she admitted for another shunt revision. After that, I quit.

10) 2009 - This year began with working again with a friend. Again, I needed to choose between career and my precious. It's another shunt revision. The gap between the previous revision was just a month! I quit and I believe that there must be something for me and the rest of us. Alhamdulillah, she's good under my care until now.

I started to change my view about life. That success is not all about money and career. It's about happiness and how to turn adversities into something positive. What is the happiest thing to do in life. What you think is good for you, mustn't good all the way. With trial and turbulence only you can be a better person. Honestly, I feel good about it. It's such a blessed that He sent us this gift. Alhamdulillah.

What I could say about year of 2009 is it is a year of FRIENDSHIP and KNOWLEDGE! We made a lot of new friends. Be it from Ratuhati, Facebook, blogging or any other source of networks. Among some of them, we shared tears, happiness, experiences, hopes, knowledge, information and awareness especially on health and each others' children condition. I'm so glad that I've met such great persons even though we haven't met each other in reality.

And it's indeed a sweet year when at the end of it, I met many long lost friendships too. I've met my school best friend. Though 1 story or 2 was not preferable, such as, few of them have passed away (one was having leukemia & another was having lung cancer), I glad that I found them back.

I just hope this Hijrah and tomorrow comes a standard new year (I might call it ISO new year), will bring me more happiness and miracles. Not only about Syafiah, but our life in general, insyaAllah. And I hope to gain more experiences and seek for more knowledge too.









p.s. : If this blog remains 'untouchable' these few days, meaning we won't be around. We're planning to head north for vacation.

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