Feb 20, 2008

Useful Links

Title : Supporting Malaysians With Disabilities
Website : http://www.disabilitymalaysia.com/index.php
Description : Our Main Aim is to Point People In The Right Direction When Looking For Disability Information and Resources.

Title : A Miracle Named Kerri
Website : http://www.geocities.com/Heartland/Flats/2932
Description : Personal story of Kerri's experiences with congenital hydrocephalus, shunting and a Craniectomy. Photo gallery and poems.

Title : All about NPH
Website : http://www.allaboutnph.com/
Description : Offers details about normal pressure hydrocephalus, including treatment, screening tests, find a physician and a support center.

Title : Ashley Nicole Schmit
Website : http://www.joinme.net/babyashley
Description : Memorial tribute in memory of her sister who was born with hydrocephalus.

Title : Association for Spina Bifida and Hydrocephalus
Website : http://www.asbah.org/
Description : Information about spina bifida, hydrocephalus, the services offered by the Association for Spina Bifida and Hydrocephalus and related topics.

Title : Childhood Hydrocephalus
Website : http://virtualtrials.com/shunts.cfm
Description : Clinical features, treatment, and information on the Slit-Ventricle Syndrome. Arno H. Fried, M.D., Mel H. Epstein, M.D.

Title : Hydrocephalus Association
Website : http://www.hydroassoc.org/
Description : The Hydrocephalus Association's mission is to provide support, education and advocacy for individuals, families and professionals.

Title : Hydrocephalus Center
Website : http://www.patientcenters.com/hydrocephalus/
Description : Patient centered guide to hydrocephalus information, resources, and reading material.

Title : Hydrocephalus Family Support Group
Website : http://members.tripod.com/hfsg
Description : Offers a place to voice experiences and receive information about hydrocephalus.

Title : Hydrocephalus Foundation, Inc. - HyFI
Website : http://www.hydrocephalus.org/
Description : Non-profit support organization provides information and resources for patients and families affected by hydrocephalus. Saugus, MA

Title : Hydrocephalus Hub
Website : http://www.healthubs.com/hydrocephalus
Description : A brief definition followed by links to overviews, research articles, case reports, images and organizations.

Title : Julia's Journey
Website : http://www.juliasjourney.com/
Description : Support and information for families who have children or loved ones with the disabling birth defect spina bifida and hydrocephalus.

Title : Kori's Story
Website : http://www.geocities.com/Heartland/Estates/7209
Description : Personal information, photos, and updates about Kori, diagnosed with hydrocephalus and shunted at age two months.

Title : Kristen's Hydrocephalus Links and Information
Website : http://www.hydrocephaly.com/
Description : Kristen, a young woman living with congenital Hydrocephalus shares her journey to adulthood. Features links to medical resources, support groups, and HYCEPH-L, an e-mail discussion list.

Title : Mafalda's Homepage
Website : http://www.geocities.com/HotSprings/4000
Description : Experiences with hydrocephalic daughter, information, photos and updates on progress. (English/Portuguese)

Title : MEDLINEplus: Hydrocephalus
Website : http://www.nlm.nih.gov/medlineplus/hydrocephalus.html
Description : Overview, clinical trials, pictures and diagrams, organizations and treatment information.

Title : National Hydrocephalus Foundation (NHF)
Website : http://www.nhfonline.org/aboutus.php
Description : The objectives of NHFonline are to assemble and disseminate information pertaining to hydrocephalus, it's treatments, outcomes, and to increase public awareness and knowledge of hydrocephalus.

Title : NINDS: Hydrocephalus
Website : http://www.ninds.nih.gov/health_and_medical/disorders/hydrocephalus.htm
Description : Information sheet compiled by The National Institute of Neurological Disorders and Stroke.

Title : Pediatric Neurosurgery: Hydrocephalus
Website : http://cpmcnet.columbia.edu/dept/nsg/PNS/Hydrocephalus.html
Description : Columbia-Presbyterian overview of causes and treatments. Hydrocephalic shunt system highlights.

Title : Pediatric Oncall: Hydrocephalus in Children
Website : http://www.pediatriconcall.com/forpatients/commonchild/hydrocephalus_in_children.asp
Description : Offers information about Hydrocephalus in children and its management.

Title : Ryan's Hydrocephalus
Website : http://www.ryanspage.org.uk/
Description : Details the birth, development, and special needs of this special boy born in 1998 with hydrocephalus.

Title : Simon Allanach's Hydrocephalus
Website : http://simon.allanach.dk/index2.htm
Description : Simon's interests and information about hydrocephalus and personal experiences. Relates causes, treatments, complications, and procedures.

Title : The Rafel's Home Page
Website : http://www.geocities.com/Heartland/Hills/5566/index.htm
Description : Family photos, stories and updates. Sarah, oldest of three girls, was born premature and lives with hydrocephalus; shunted since one month old.

Title : The Riccio Boys
Website : http://hometown.aol.com/cariccio/index.html
Description : Photos and family updates on the Riccio brothers. Family updates and hydrocephalus treatment information.

Title : Tim and Hydrocephalus
Website : http://www.hydrocefalus.com/main.html
Description : Features their son who was born with hydrocephalus and oesophagusatresi.

and more to come....!


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