It has been 5 months Syafiah is free from any shunt revision up until today. It is approximately 151 days since her 3rd shunt revision which was on January 16, 2009. Alhamdulillah as this is the longest shunt usage so far.
Her 1st shunt placement was on June 11, 2008. Approximate usage was 140 days until the 1st shunt revision which was done on October 29, 2008. 2nd shunt revision was done after 44 days from the 1st revision with the longest stay in HSB (12 days). The shortest was between 2nd shunt revision and 3rd shunt revision, which was 35 days only.
The reasons of failure are various:-
1) 1st revision - supoptimal shunt function, swelling around reservoir & shunt compressible but slow refilling.
2) 2nd revision - shunt infection.
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3) 3rd revision - blockage at the distal end.
So far, she has gone through 7 operations - 3 EVDs, 1 shunt placement and 3 shunt revisions with 6 times of CT scan! I can't imagine how is it like to be on the bed in the operation theater so many times. She is indeed a survivor and tough fighter! I don't think I can't make it and have a spirit like hers.
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This is one of the "why" I don't push her and expect her to be what I want her to be (i.e. should do this and this, at certain age). She went so much of ups and downs. At one time her left side couldn't move at all, but now they could move actively. I pray and hope that this shunt will last longer and miracles would happen along the way, insyaAllah.. ameen!
p.s. : Mak dia yang tak tahan dok spital sebenarnya. Masa 3rd revision tu saya surrender habis. Badan sakit, selsema. Though HSB boleh kira selesa untuk yang menunggu, tapi saya tetap juga sakit.
Her 1st shunt placement was on June 11, 2008. Approximate usage was 140 days until the 1st shunt revision which was done on October 29, 2008. 2nd shunt revision was done after 44 days from the 1st revision with the longest stay in HSB (12 days). The shortest was between 2nd shunt revision and 3rd shunt revision, which was 35 days only.
The reasons of failure are various:-
1) 1st revision - supoptimal shunt function, swelling around reservoir & shunt compressible but slow refilling.
2) 2nd revision - shunt infection.
+2.jpg)
Switch the shunt from right to left side. She has both 'karipap' on her head. Her hair was fully shaved by a Chinese specialist! (yang hensem tu.. huhu!)
I tell you, stitches were opened without any drugs.
I tell you, stitches were opened without any drugs.
3) 3rd revision - blockage at the distal end.
Post operation on 16 January 2009.
Before she was brought home on 19 January 2009.
Before she was brought home on 19 January 2009.
So far, she has gone through 7 operations - 3 EVDs, 1 shunt placement and 3 shunt revisions with 6 times of CT scan! I can't imagine how is it like to be on the bed in the operation theater so many times. She is indeed a survivor and tough fighter! I don't think I can't make it and have a spirit like hers.
.jpg)
This is her today (dengan kepala yang grunge sebab kemek!). Just look at her left hand, has to be straighten by HO.
This is one of the "why" I don't push her and expect her to be what I want her to be (i.e. should do this and this, at certain age). She went so much of ups and downs. At one time her left side couldn't move at all, but now they could move actively. I pray and hope that this shunt will last longer and miracles would happen along the way, insyaAllah.. ameen!
p.s. : Mak dia yang tak tahan dok spital sebenarnya. Masa 3rd revision tu saya surrender habis. Badan sakit, selsema. Though HSB boleh kira selesa untuk yang menunggu, tapi saya tetap juga sakit.
9 comments:
K sue, saya yg tgk gmbr tu mcm terasa sakitnya stiches tu, tu belum tuan punya diri kan..
Memang kuat betul semangat syafiah juga Allah masih bagi dia peluang hidup juga adalah satu rahsia yang tidak bisa kita ketahui. Dia istimewa diuji sedemikian rupa utk diuji keimanan org di sekelilingnya juga.
Keep up the good work syafiah!. Be a good girl ya.. :)
So glad to hear shunt is stable! Here's to many more years out of it!
kak sue,
syafiah is truly a fighter..sy beranak ceaser pon dh terasa sakitnyer.. ini kan kena operate so many times..instead of the different look of her head..syafiah has very cute face..
I hope my Shafiyyah also be a truly fighter in throughout her life..!!
Aduh sakitnya..Syafiah memang kuat semangat..Ina tengok Nabila kat NICU pun dah cukup gerun tapi lihat Kak Sue..sememangnya lagi tabah dari Ina..Apapun..Syafiah memang kuat..!
Assalamualaikum Suealeen
Masha Allah, good for Syafiah that she is free from any shunt revision up until now. There is no might nor power except with Allah.
Masha Allah, I admired you and Syafiah for what both of you have been through. May Allah reward you both with good in this world and the hereafter, ameen.
Ameen to your dua and may Allah add more to it, Ameen.
Hugs
lightnur
gambar 2nd last tu, terserlah muka budak cerdik.alhamdulilah, perkembangan syafiah semakin hari semakin improve.insyaallah tak lama lagi dia akan join kakak dan abang dia tolong 'kemaskan' rumah.
p/s: rasa macam kecik je beri komen dikalangan bloggers ni.nak buat blog sendiri 'rajin' sangat.
alahai sue, akak tak leh tahan air mata nengok pic-pic ni.. pilunya...
apa la budak secomel dan sekecil tu tau...kesian dia...
uhuks...
hug and kiss utk syafiah....
mirah:
Hanya Allah swt yang mengetahui hikmah kelahiran dan kehidupan Syafiah. Antara ujian hebat pernah kami terima tapi kami menerima seadanya.
Sarah:
InsyaAllah, hope it’ll last long as Violet’s. So far, I’m happy with her condition.
Mrs Azmar:
I hope I won’t experience c-sect in my life. InsyaAllah, Shafiyyah pun akan jadi truly fighter jugak.
Noina:
Ibu mana tak gerun bila anak di hospital. Tapi alah bias, tegal biasa. Ibu dia ni kadang mental bersedia, fizikal plak meragam macam budak².
Lightnur:
Wsalam Lightnur. Ameen for your du’a. Saya mengharapkan keredhaan Allah atas apa yang kami lalui.
SA7:
Ye la, cerdik. Semalam buat perangai pasai over tak tido.
Semakkan rumah ye.. nanti babap naik kat kaki.
Alah.. nak rasa kecik wat pe.. Buat la blog ni cam rumah sendiri. Macam tak biasa pulak.
Pnut:
Tak pe kak.. dah janji dia dengan Allah swt camtu.. Nak wat camna. Allah swt sayang kat dia lebih. Kita kena sabar dan usaha je la yang terbaik..
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