A little update on Syafiah...

Suka tengok pandangan matanya dalam gambar ni.

1- My husband and I always call her Kak Teh. Reasons - because she is PUTIH and she is the number 3rd. Kak? Hahaha.. harapan untuk ada adik lagi la tu.

2- She could pull out her HO. So how am I going to put it again on her hand?



3- There's a day, she was overslept. She didn't fell asleep during the day (play, terajang², hentak² mainan, etc.). Came the night she was very cranky. I guess she had a headache. After consuming a bottle of milk, I began to pat on her rear. She whimpered several times until she fell asleep. Reason she couldn't sleep that whole day was she was so sensitive towards the sounds and the lights. Her siblings were making a lot of noises.

And I have no choice but to do this:

Don't disturb me! Leave me alone... Kalau tak buat camni alamat susah la dia nak tido. Dah pandai demand dah sekarang ni. Lambat sikit pun dah pandai merengek!

4- She has this attitude of when I'm far, she'd make noise, sounds like she was calling me. Whenever I'm near, she'll be quiet or sometimes she'll smile or giggle. Pastu ajak main. Malam ni je 'gelak tanpa bunyi' je kerja dia. Pastu kaki dua² belah angkat tinggi² sambil sepak², dengan tangan pun aktif benar bergeraknya. Usually she'll doze off early, but last night it's a bit late due to the nap she had around 7pm - 10pm.

5- She could roll over to the right side (it's left before) and she could lift her butt easily.

6- If she's exhausted or refused to play (for example, we tickle her), she'd quickly turn herself to the left. Macam nak bagitahu.. tak nak la... saya penat ni.. aahhhhh!







p/s : She'll have a 3-months-basis appointment with neuro this coming 07/07/09.

Have you ever seen HO?

We're so familiar with AFO - ankle foot orthosis/orthoses. But have you ever heard or looked at HO - hand orthosis/orthoses?

This is how it looks like:

Hers is light blue

The purpose to wear this HO is to straighten her left hand & fingers. Suka nau bagi bengkok dan genggam tangan. This HO could be adjusted and could be pulled out of her hand. She started to wear HO this morning after returning from her therapy. Her daddy told me the procedure. Sounds interesting, unfortunately, I've always missed new knowledges as I wasn't around.

Another mom to a hydrocephalic, SMS-ed me this morning, telling me that her son is hospitalized again due to the leakage at the distal end. I'm not sure how many revisions he had so far but I've met them several times when we're in and out of the HSB. There's one time they stayed in the ward for more than a month!

Her son is a spina bifida patient too. He always smiles like Ian, Jiey's sweetheart, especially when he meets Malays, nurses and doctors. Syafiah ni 'sombong' beno... nak senyum pun pilih² orang. Nak stay pun memilih jugak. Even with her own daddy. Kalau dengan orang yang dia tak kenal/nak, mesti merungut sepanjang dia ditinggalkan. Frankly, I'm waiting for the moment she'll laugh at me!